Nick and I are feeling lost right now. We feel like we learned everything we could about Albinism over the last 2 years, and then we find out that he doesn't even have albinism. They aren't sure exactly what his diagnosis is at this point. In fact, I can't even get the doctor in Little Rock to return my calls to answer my questions. We have made an appointment with a specialist in Memphis, who has provided us with more information than the doctors in Little Rock have over the last couple of years. We go to Memphis on November 14th and will be staying with my mom's cousin, Regina.
What we know for sure right now is:
*Beckett was misdiagnosed
*Beckett will most likely lose his vision
*Beckett is a strong willed, independent, determined child, who I know will not let this get in his way of living the best life he possibly can
*We have a strong support system to get us through this
*I am a strong willed, independent, determined mama, who will do anything to make sure my son has the best quality of life possible.
*Our support services (therapies) are out of this world! Seriously! Beckett has the most amazing therapists. I will forever be grateful for the time, effort and love they put into the work they do with him each week/month.
*Beckett is happy, smart, and funny
*He is our rainbow baby. I prayed for him. I asked for him. I begged for him. I promised The Lord I would do whatever He wanted me to do in life, if He blessed me with a child, and that I would take on whatever needs that child had. I could not be more thankful for the child he sent me, and I know these trials will only strengthen our family, and our faith.
Beckett after his ERG. He REALLY wanted Cheetos
My favorite picture EVER of Beckett. I look at this picture and my heart swells because of the joy this beautiful child brings to me.
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